Sunday, November 16, 2008

"Everything"

Another song title...this one is by Michael Buble. I thought I would include it as it is such a great song and can't help but make one smile. Our good friend, Aly, also introduced me to Mindy Smith and her songs. Try out "It's Amazing" by her...can't go wrong.


Calm waters right now as I am doing well and the predisone gets reduced each month. Any sign of cGVHD and my docs will find it and it all ends and we start over. But "waiting for the other shoe to drop" is really hard to pull off so I have tried to moved my blanket from under the tree full of shoes that is cancer and surviving it and placed my trust in the Lord and I relinquish control of all my life's valleys and mountaintops to Him. It is amazing to realize finally that the valleys are much wider and longer than the ground under your feet on the mountaintops. So as I travel through them toward the mountaintops, as we all do, I find comfort in the daily gifts and blessings. Recently, a local businessman was diagnosed with ALS (Lou Gehrig's Disease) at age 46. We all know him but as I felt it in my gut when I heard, I was again reminded of how life is so cool but so fragile. Dang! I guess these things get to me more now...must be the medications. I pretty much get misty during Disney films too...ha ha


OK in other news, we lost football playoffs and Tommy likely dislocated his knee cap but it will heal with 2-3 weeks of immobilization and physical therapy. He is tough and we are glad the season is over. Everyone else is doing great and we look forward to Thanksgiving and a quiet family Christmas.



Keep in touch.


Thanks for the thoughts and prayers


Rich

Tuesday, November 4, 2008

Nowhere to Go, Nowhere to Be

Hay all
Yes, that is the title of a Kenny Chesney song that is great to just chill too. But yesterday was anything but in sync with the lyrics of the song. We made a regular trip to Stanford (with rain 12 hours round trip) and visited with eye and BMT docs. Great visit with eye guy giving me the ok to continue my care locally as my eyes have improved since we started treatment. cGVHD and ALL are progressing nicely according to my BMT MD and we continue to monitor both closely as we all are in agreement regarding how serious both are and how quickly things can change. That being said, he did lower prednisone a little (yes!) and I am praying for continued resolution of my symptoms. My ALL at my age doesn't get the cure nod until 6-8 years out so I am fine with this and so thankful for each day (i know I am repeating that a lot but it's so true...sorry)

Laura is doing great and she is a saint now, officially, as many of you have already acknowledged:) No really she is the best and puts up with the many twists and turns I provide her with this battle. Tommy's team is in playoffs and Meghan and Katy are at Nutcracker rehearsal all the time. Don't forget to attend if you are local and there is a special performance just for oncology patients and their families on Thursday, December 11th prior to weekend performances.

Vote!
Remember how amazing our God is and treat each and everyone with respect and love...He does.
PS: it's OK to agree to disagree too:)