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Hi All,Many of you have received an email about my family starting this blog. I am new to blogging but this one is pretty user friendly so my first entry is to remind everyone that my diagnosis on October 19th, 2007 is approaching one year. To be honest, my BMT was on March 4th, 2008 so my "birthday" of one year will be in 2009 but being alive and with my family each day continues to be a gift I never take lightly.
My chronic Graft vs Host Disease (cGVHD) is stable and will be with me likely into the near future according to my docs and other resources I have investigated. The Stanford ophthalmologist keeps using the word "improving" at our visits each week and my BMT team specializes in cGVHD now so I am stoked about that...such a God thing:) Also, I have connected with a group that has allowed me to access resources and experts around the country if I wish to explore options and second opinions in the near future. Please don't hesitate to ask me if there is someone you know who needs this info or anything from me.
But for now, I continue to chug toxic medications, offsetting them with vitamins, shakes and a workout schedule that demands flexibility but keeps me somewhat limber (less limber also cGVHD side effect-jeez:( Laura has returned to work part time with Best Care as a mother-baby Home Health nurse. She loves those babies! Katy and Meghan are gearing up for their Nutcracker performance in December at the Cal Poly Performing Arts Center. Meghan is the lead part of Clara and she is awesome. Katy is an apprentice Company member and will be in many parts of Nutcracker too. Tommy is banging heads in SLO Youth Football and loving it.
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Overall, we are stoked for each day together...so stoked! As I often do, I will end with a quote:
"Yesterday is already a dream and tomorrow is only a vision,
But today well lived makes every yesterday a dream of happiness,
and every tomorrow a vision of hope" Rick Hoyt
9 comments:
ALOHA RICH! I love this idea! It will be good to see the updates more often. I really miss you! I am looking forward to seeing you and family on Thursday!!! Wish Emily & I could stay longer, but the short visit will have to do for now. Can't wait for a BIG HUG!!! Love, Your Perfect Match and Loving Sis, Beth
Rich, I am so thankful for this first year out for you and we are also glad you are blogging so those of us "far away friends" can keep in touch. Love to Laura and the kids. This year celebration is quite a victory for them too.
Wow! I'm the first to post a comment! Welcome to the world of blogging! So Glad You're Here -- and thanks for the continued updates! For those of you out there who like to use Google, there's a great product called Google Reader that you can add this site's URL to and it will track every new post! Check it out at http://www.google.com/reader!
Hi Laura and Rich,
Thanks for adding us to your email list. We've saved your blog link into our favorites and will look forward to following your journey as we enter ours.
John had his new birthday yesterday and so far, so good. His counts dropped today so he is feeling pretty low but we know he will have to get worse to get better.
Thanks for popping in to visit us last week. It was really great to see you, looking so good, on the other side of this.
Best to you and Laura and your family.
Dana and John Fiore
Hi Rich, Laura, and kids,
How we wish we could see you, but we're so glad the pix keep coming. Our prayers and thoughts are always with you. Yesterday was Grandad's birthday so it was a great day to start your blog as I know he watches over you with "the best of the best!"
Keep up the good work and remember your family on the East coast love you! Aunt Linda, Uncle Larry and cousins (old, new, and one on the way!
So great to hear from you Rich! I have been thinking about you so much these days. I have started back to work this week and I just wish you were there too! Can you believe it has been a year? My diagnosis was October 4th, 2007. So, tomorrow Rick and I are going to celebrate with the girls. So far, everything looks great. I have an MRI on Tuesday, but I think it will be fine. I can't wait to see you and I look forward to keeping up with you and your family on your blog!
Hi Rich,
We are here for you and your family today, tomorrow and always!
Hugs, Amy
oh hey my dad has a blog now...
Hi Son I'm looking forward to seeing you and the rest of the family this weekend In the meantime I send all my love and hugs. Mom
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